Hello friends,Today was a toughie.I had to take Ariel to Children's Hospital to get her blood drawn for MLD and Krabbe.I look at this picture and it makes me want to cry.Ariel is so fun loving and to see where she has regressed to breaks my heart.Even if it's just from Epilepsy and not MLD her cognitive function is very poor.Then to think of the possibility of what if she does have either of these,then what?Please keep praying for Ariel and for the family and that my sanity holds up.We have not said anything to the kids and we won't,unless she tests positive for it.I will probably be spending these next 10 days holding her closer,snuggling her more and spending a lot of time doing the things she loves most.I'm glad we will be getting to church this Sunday.We had missed days because the heat was making Daniel so ill.I'm glad I'll go no matter what.I could sure use some uplifting news.God bless,Linn

This pic shows my little jungle girl.Ariel loves animals and she's so good with them.She has a guinea pig and dog that she dotes on.Now for the awful stuff.After finding out she suffers from the same type of Epilepsy her brother has her Neuro wants her tested for MLD and Krabbe,which are both fatal.It literally makes me sick to think about it.I'm hoping that it's just the Epilepsy happening at night that is causing her cognitive problems.She's such a complicated case and it took me two years of yelling and screaming at doctors and saying there's something wrong with my daughter before they'd listen it just made me nuts.My insurance company are already giving me hassles about the testing and it looks like we are going to go through a bunch of red tape.As if having this testing done isn't going to be stressful enough they have to add more too it.Please lend my little girl your support and especially your prayers and if you get a sec can you please sign her guestbook.Thank you,God bless,Linn

I thought this picture was cute Ariel the turtle.Ariel had speech lessons this week and we had a tea party with all the terapists.We did it in real old fashioned tea party style with china and scones and little cookies and it was a blast.Ariel had so much fun we were excited and happy for her.I got some very bad news this week.Ariel's IQ showed her in the moderately retarded range and I'm devastated.Now we have to redo everything in speech and go over everything all over again and figure out where do we go from here.I'm going to speak to her Neurologist this week and ask him.I'm just wondering did she have this from lack of oxygen at birth or because of seizure activity or what? It's so frustrating,but it makes sense as to why at 12 she can only do kindergarten level work.Anyway more tests and tests and tests ugh! Yesterday we went sailing and to the mariner's game.Well i need to go clean my house.Please sign ariel's guestbook and let her know you stopped by.God bless,Linn

Hello friends,I'm sorry it's taken me so long to update.We are still in waiting mode for Ariel's VEEG to come back and Neuropsyche report.Her ankle is severely sprained and she's on crutches and very unhappy about it.I'm hoping we don't have a repeat of last years swelling with her wrist that went on for 3 months.It would be a bummer to not be able to use her leg for so long.We will keep using this blog for journal updates,but another page is being created for her as a cover page.Well I need to get going doctors stuff this morning.God bless,Linn