Ariel Marrero

Ariel is a 12 yr old girl who is basically a medical mystery.She has seen countless doctors who are still trying to figure out what's wrong with her.She has been losing cognitive function and at the age of 12 comprehends like a 5 yr old.We still don't know why,but we are hoping to figure things out soon.

Sunday, September 03, 2006



Lots going on with Miss Ariel these days.Tuesday we went to her speech lessons and she did very well.We are thinking that the anti epileptic meds are helping her retain things better.Wednesday we went to the Genetecist and went over everything.She said she will take a month and gather up all Ariel and Daniel's labs,MRI's,x-rays,biopsies and records and go through everything with a fine toothed comb.She said after a month she will get back to us and tell us what blood work and labs she wants done and any muscle biopsies she may like.She seems very determined to find an answer.I sure hope so it's so frustrating knowing somethings wrong and not knowing why.Friday we went to Ariel's Neuro and she was officially diagnosed with Epilepsy and cognitive impairment or Encephalopothy,which is a fancy name for the same thing.He said I guarantee you there will be more diagnosis for her.He believes she may have Mitochondrial disease.Especially since it can manifest in so many different ways.Thursday she is supposed to be getting an Endoscopy to see what's going on with her tummy,since she has so many issues with it right now.She's on 3 different tummy meds right now just to eat and I told them something isn't right here.I need to check my insurance though to see if Endoscopy is covered or we may have to postpone it.Well need to get ready for church.God bless,Linn

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