Hello Friends,Praise God Ariel does not have MLD or Krabbe we are so thrilled.Now the search goes on for what is causing her to have the mental deterioration and seizures.She went today for more labs testing for Mitochondrial,Fragile X and several other genetic syndromes.Hopefully we can figure out what's going on.Besides the mental deterioration she has some odd behaviors at time.She does not like loud sounds or change at all,she is deathly afraid of elevators and heights.She has lost abilities like to use scissors and can't even turn the shower on for herself.Something is just not right.I sure hope they figure it out soon. On another note I am absolutely disgusted that you spammers would put your garbage on my daughters medical website.She comes here for support and do you know how discouraging it is for her when people leave that junk,when she thought that someone signed to give her support.I will not read a thing you put,but just delete it.