Ariel Marrero

Ariel is a 12 yr old girl who is basically a medical mystery.She has seen countless doctors who are still trying to figure out what's wrong with her.She has been losing cognitive function and at the age of 12 comprehends like a 5 yr old.We still don't know why,but we are hoping to figure things out soon.

Monday, August 14, 2006


Hello friends,Sorry it has taken me so long to get back to you.Even though I know a lot of you read Ariel's updates on Daniel's page as I often put them there.Things are going okay in our neck of the woods.Doctors,doctors and more doctors.Ariel underwent labs for another whole host of things like Mitochondrial Disease,Fragile x,DNA and Chromosonal testing whew!They take a while to get back like a month,but aleast they aren't as scary as the Krabbe and MLD.Friday she went to the doctor,because she pulled ligaments and sprained her arm.She's in a hard splint and we see the Orthopedist today.Poor girl can't ever get a break as far as hurting herself goes.I think it's because of the Absence seizures where she's blanking out all the time.We are hoping to go to the beach again and do some more fun things before we have to head back to school.We will also be heading to the geneticist at the end of August.Well I have an appointment myself.God bless,Linn

4 Comments:

  • At 11:37 AM, Blogger Jenn said…

    Hello Ariel! You have a beautiful website and I like all of your pictures and Disney graphics.

    I hope your doctors can determine what is ailing you so it can be taken care of. You will be in our prayers as you wait for test results. Praises to God that your Krabbe and MLD tests came back negative.

    Big hugs from CA!

     
  • At 8:54 PM, Blogger Charlotte said…

    I am glad that the Krabbe test and MLD tests came back negative. That is great! I will continue to pray that they find out what is going on soon.
    You have some wonderful pictures up on your site right now. You are a very pretty girl. Take care, and I will come back and visit you soon.
    You and your family are in my thoughts and prayers,
    Charlotte/Dennis and Ashley's mom Dennis' page

     
  • At 9:49 PM, Blogger lworley416 said…

    Praying so that you'll get the answers you need! It's got to be extremely frustrating not knowing what's going on. But with each test at least you're eliminating some things.

    May the Lord give you peace, the peace that only He can give!
    Rom 15:13 Now the God of hope fill you with all joy and peace in believing, that ye may abound in hope, through the power of the Holy Ghost.

     
  • At 9:48 AM, Anonymous Joanne said…

    Hi Ariel!
    Just dropping in to check on you, I sure hope they they will figure out whats wrong so they can help yah out real soon!

    With love,
    Joanne and the Dream Team
    ~Simply Joanne~
    ~Bridge of Dreams ~
    ~The Prayer Bears Website~
    Ones Who Care, SOEW

     

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