Ariel had a great time fishing today.We went to a Cast for Kids event and it was wonderful.There was so much for the kids,from fishing,new tackle boxes,rods and reels,t-shirts,hats & life jackets,to face painting,barbecues and plaques.We had a wonderful day and I want to thank all the wonderful families who volunteered.This is Ariel and her new friend Kira from the cast event.Ariel had her Endoscopy this week and again they saw nothing.The G.I. doc thinks her swallowing problems are Neurological.Hopefully the Genetecist can give us some answers.Please keep Ariel in your prayers that we get some answers for her.God bless,Linn

Lots going on with Miss Ariel these days.Tuesday we went to her speech lessons and she did very well.We are thinking that the anti epileptic meds are helping her retain things better.Wednesday we went to the Genetecist and went over everything.She said she will take a month and gather up all Ariel and Daniel's labs,MRI's,x-rays,biopsies and records and go through everything with a fine toothed comb.She said after a month she will get back to us and tell us what blood work and labs she wants done and any muscle biopsies she may like.She seems very determined to find an answer.I sure hope so it's so frustrating knowing somethings wrong and not knowing why.Friday we went to Ariel's Neuro and she was officially diagnosed with Epilepsy and cognitive impairment or Encephalopothy,which is a fancy name for the same thing.He said I guarantee you there will be more diagnosis for her.He believes she may have Mitochondrial disease.Especially since it can manifest in so many different ways.Thursday she is supposed to be getting an Endoscopy to see what's going on with her tummy,since she has so many issues with it right now.She's on 3 different tummy meds right now just to eat and I told them something isn't right here.I need to check my insurance though to see if Endoscopy is covered or we may have to postpone it.Well need to get ready for church.God bless,Linn