Hello friends,Sorry I have been so bad at updating things are just busy,busy and about to get busier with school starting.So far all labs look okay with the exception of one and I'm not going to get into that one until I talk to Ariel's Neuro because it may be something or nothing.We went to the Genetecist today and she's going to take a month going over all Ariel & Daniel's records and seeing if she can find anything big picture going on.I sure hope she can figure out something.Then she will do more labs and possible biopsies.So more waiting Ugh!!!! Friday we go to Neuro so he may offer some light on things hopefully.Well you all enjoy the last few days of summer.God bless,Linn

Hello friends,Sorry it has taken me so long to get back to you.Even though I know a lot of you read Ariel's updates on Daniel's page as I often put them there.Things are going okay in our neck of the woods.Doctors,doctors and more doctors.Ariel underwent labs for another whole host of things like Mitochondrial Disease,Fragile x,DNA and Chromosonal testing whew!They take a while to get back like a month,but aleast they aren't as scary as the Krabbe and MLD.Friday she went to the doctor,because she pulled ligaments and sprained her arm.She's in a hard splint and we see the Orthopedist today.Poor girl can't ever get a break as far as hurting herself goes.I think it's because of the Absence seizures where she's blanking out all the time.We are hoping to go to the beach again and do some more fun things before we have to head back to school.We will also be heading to the geneticist at the end of August.Well I have an appointment myself.God bless,Linn

Hello Friends,Praise God Ariel does not have MLD or Krabbe we are so thrilled.Now the search goes on for what is causing her to have the mental deterioration and seizures.She went today for more labs testing for Mitochondrial,Fragile X and several other genetic syndromes.Hopefully we can figure out what's going on.Besides the mental deterioration she has some odd behaviors at time.She does not like loud sounds or change at all,she is deathly afraid of elevators and heights.She has lost abilities like to use scissors and can't even turn the shower on for herself.Something is just not right.I sure hope they figure it out soon. On another note I am absolutely disgusted that you spammers would put your garbage on my daughters medical website.She comes here for support and do you know how discouraging it is for her when people leave that junk,when she thought that someone signed to give her support.I will not read a thing you put,but just delete it.